Current Projects 

Parent Interviews Regarding Service Transition for Children with DD (PI: Christine
Mirzaian, Co-Investigators: Cecily Betz, Rowan Smith)

Needs assessment survey: Transition to adult behavioral health care among adolescents and emerging adults with IDD (PI: Cecily Betz; Co-Investigators: Christine Mirzaian, Alexis Deavenport-Saman)

HCT Experiences of Young Adults with Chronic Illnesses (PI: Cecily Betz)

Pre Health Care Transition Data Extraction of SB Youth/Young Adults (PI: Cecily Betz)

Peer Navigator Retrospective Analysis (PI: Cecily Betz; Co-Investigator: Christine Mirzaian, Rowan Smith, Julia Ismael)

Parent Survey of Academic and Health-Related Accommodations (PI: Cecily Betz)

Survey on the transition needs of youth and young adults with IDD (PI: Cecily Betz; Co-
Investigators: Christine Mirzaian, Alexis Deavenport-Saman, Sharon Hudson, Rowan Smith)

Internet Survey of the Health Care Transition Experiences of Young Adults with Chronic
Illnesses/Health Conditions/IDD (PI: Cecily Betz, Co-Investigators: Jihye Lee, Tyra
Gridwood, Manu Raam)

Transition Summit II

Peer Navigator Employment Training Program for Young People with Disabilities

Transition Summit III

Publications

Mirzaian, C., Smith, R., Porter, C., de la Loza, G., & Betz, C. (2025). Peer Navigator
Employment Training Program: A Health Care Transition Service-Training Model.
Medical Research Archives, 13(3). doi:10.18103/mra.v13i3.6446

Dave, M., Betz, C., Munce, S., Parraga, P., Shanske, S., Nathawad, R., Davidson, L. F.,
Berben, L., Dave, S., Arora, T., & Díaz-González de Ferris, M. (2024). Caregivers' Perspective on Successful Health Care Transition Outcomes for Adolescents and Young Adults With Special Health Care Needs. The Journal of adolescent health : official publication of the Society for Adolescent Medicine, 75(4), 635–641. https://doi.org/10.1016/j.jadohealth.2024.05.007

Mirzaian, C. B., Deavenport-Saman, A., Hudson, S., & Betz, C. L. Health care
transition recommendations for young people IDD and co-occurring behavioral health
conditions: Stakeholder survey findings. Health care transitions, 2, 100075.
https://doi.org/10.1016/j.hctj.2024.100075 (2024).

Mirzaian, C. B., Solomon, O., Setaghiyan, H., Hudson, S., Goldfarb, F., Eaton, G. L.,
Vasquez, R., Babb, L., & Yin, L. (2024). Enhancing early intervention by including
parent navigators with lived experience in a pediatric medical home. Families, systems & health: the journal of collaborative family healthcare, 42(3), 405–416.
https://doi.org/10.1037/fsh0000864

Betz C. L. (2023). Health care transition planning for adolescents and emerging adults with intellectual disabilities and developmental disabilities: Distinctions and challenges. Journal for specialists in pediatric nursing : JSPN, 28(3), e12415. https://doi.org/10.1111/jspn.12415

Dave, M., Betz, C..L, Munce, S., Parraga, P., Shanske,S., Nathawad, R., Davidson, L.F., Berben, L., Dave, S., Aurora, T. Ferris, M. (2024, in press) Successful Health Care Transition Outcomes for Parents and Caregivers of Adolescents and Young Adults with Special Health Care Needs, Journal of adolescent health

Mirzaian, C.B., Deavenport-Saman, A., Hudson, S.M. Betz, C.L.(2024).Barriers to Mental Health Care Transition for Youth and Young Adults with Intellectual and Developmental Disabilities and Co-occurring Mental Health Conditions: Stakeholders’ Perspectives. Community mental health journal . https://doi.org/10.1007/s10597-024-01262-x

Betz, C.L., Mirzaian C.B., Deavenport-Saman A, Hudson S. (2024, in press) Intellectual and Developmental Disabilities Health Care Transition: California Stakeholder Perspectives. Intellectual and developmental disabilities.

Betz CL, Díaz-González de Ferris ME. The Health Care Transitions Journal: Carpe diem. Health Care Transitions. 2023;1:100001-. doi:10.1016/j.hctj.2023.100001

Fair, C. V., Betz, C., Naranjo, D., Porter, J., Bailey, E. C., Korycinski, H., & Ferris, M. (2023). Stakeholders' Perspectives on Caregiver Outcomes for Health Care Transition for Adolescents and Young Adults with Special Health Care Needs: A Qualitative Study. Child: care, health and development, 10.1111/cch.13114. Advance online publication. https://doi.org/10.1111/cch.13114

Betz, C.L., Hudson, S., Skura, A., Rajeev, N., Smith, K.N., Van Speybroeck, A. Exploratory study of the provision of academic and health-related accommodations to transition-aged adolescents and emerging adults with spina bifida J Pediatr Rehabil Med. 2022 15, 593–605 DOI:10.3233/PRM-10116N

Betz, C. L., Mannino, J. E., Disabato, J. A., & Marner, V. (2022). Health care transition planning: A potpourri of perspectives from nurses. Journal for specialists in pediatric nursing : JSPN, e12373. Advance online publication. https://doi.org/10.1111/jspn.12373

Cheak-Zamora N, Betz C.L, & Mandy T (2022). Measuring Health Care Transition: Across Time and into the Future Journal of Pediatric Nursing, 64, 91-101, https://doi.org/10.1016/j.pedn.2022.02.018.

Betz CL. Analysis of Nurse-Led Models Heath Care and Implications for Practice, Research, Education, and Policymaking. In: Worldwide Successful Pediatric Nurse-Led Models of Care. Springer International Publishing AG; 2023:313-332. doi:10.1007/978-3-031-22152-1_17

Betz CL. Nurse-Led Models of Care for Infants, Children, Youth, and Families: Introduction and Overview. In: Worldwide Successful Pediatric Nurse-Led Models of Care. Springer International Publishing AG; 2023:1-12. doi:10.1007/978-3-031-22152-1_1

Betz CL. Worldwide Successful Pediatric Nurse-Led Models of Care. First 2023. (Betz CL, ed.). Springer International Publishing; 2023. doi:10.1007/978-3-031-22152-1